Snow on the Corn and Other Things that Just Don’t Seem Right

I guess you only get so many chances, at least in this life. Nancy, my favorite chicken, went quietly in the early morning cold of All Soul’s Day. She had never really been the same since she had survived the raccoon attack last winter, though she tried her best to keep up with the others in the flock. I could tell she was slowing down. She mostly hung out under the roost in Coop #2, which seemed to be the place for ailing chickens, chickens at low places in the pecking order, roosters that had fallen from favor, and other chicken outcasts. It was also the place where I would discretely drop mealworms and sunflower seeds to let these beings know that though I could not do much for their situations, still they were loved and cared for.

Tonight marked the beginning of a journey which also stamped the end of another. I made it to the dispensary to get our first round of medical cannabis for our son. He had a small piece of chocolate tonight. He didn’t really like the taste, but soon he was tucked in his bed, sound asleep. It is too early to tell if this long, hard path has been worth it, but we are finally on our way. There is a sadness recognizable in this culmination of emotion, perhaps because hope…hope can be hard. Hope, even, can be uncertain.

There are some things I’m not going to understand, no matter how long my place on this earth.

In our foster parenting classes we discussed the concept of expected loss versus unexpected loss. Aunt Marion lived a long life by anyone’s standards, so her passing, at age 100-ish, was not surprising. Still, though, the news was as unwelcome as all of the “what-ifs” that made their way into my head. Her brother, my Grandpa Gene, has been dead for nearly three decades. Dan and I had made the trip to St. Louis with our young family nearly every year, to visit Grandma Evie, so that I could spend time with one of my dearest people, and so the children might know their great grandmother. The trips usually included a visit to Aunt Marion, who did not live far from Grandma, and who desperately loved birds. She was an independent, positive-spirited lady who was a vegetarian and who wore her hair longer than any of the older women that I knew. Though we likely wore her out with our visits, she never bid us an early farewell, and her incessant smiles are marked in my memory. I know that I have taken more from her than I was able to give.

Grandma Evie died near the beginning of our fostering journey, during which road trips were only successful if they were about ten minutes long and involved me folding myself into the third seat to break up fights and to award quiet moments with some sort of candy. We had meant to go for another visit. We had meant to do many things. We just didn’t. We couldn’t. There were cards and letters, but we never made it back to St. Louis.

Aunt Marion died, but also, she lived.

I couldn’t explain the depth of emotion I felt as I gave my child the small piece of chocolate which was to assure his rest, to still his mind and carry him to his winter’s nap on this fall evening where the temperature rivaled the most fierce of any January cold.

There is still so much work to do in the garden. Mounds of golden mulch stand frozen from the days of rain followed by an early deep freeze. The garden gate, still propped open with a log to allow access to the chickens for their harvest time foraging, exposes mother nature’s angry deed. My hard-working cart, full of leaves, wilted weeds, and tired jack-O-lanterns, stands frozen amid the empty raised beds and blueberry bushes which still await their blankets of compost and pine needles. Perhaps there will be more days. Perhaps there will be more time. Perhaps I will have to close the garden shed for the winter and catch up with myself in the spring.

There wasn’t enough time. How did I know when I packed those pumpkins into the cart, that this would be my last day in the garden? How do we know that what we have fought for for more than four years is going to make a difference?

Maybe it’s best not to know we are out of time, until we actually are.

Rest In Peace, sweet Nancy.

Rest In Peace, dear Aunt Marion. I believe I have you to thank, at least in part, for my love of birds.

Still Brave: A Birthday Tribute

It’s the eve of your twelfth birthday. The picture in my head may have been a bit different from what I was expecting, but I should have known a long time ago to stop expecting, because there just doesn’t seem to be much sense in that.

I wish you hadn’t told me that you were starting to get a mustache, but I wish harder that I hadn’t looked, because I am not ready to see. I am not ready to see lots of things, but here I stand, knowing that in another birthday or two, I may actually have to buy you a razor.

On the basketball court, I watch as you run with your peers and keep pace with the coach’s demands. You dribble the ball through your legs, and you have a pretty slick left-handed lay-up.

You have come a long way. I wonder if I expected that. What I didn’t expect was the fallout behaviors of the younger children that would manifest as your own chaos was starting to fade. It has been hard around here lately. I know that your sadness looks like anger, your frustration looks like anger, and your anger looks like anger, but that you feel so very deeply and wish only to be heard and understood. I think that’s really all any of us wants.

Four years ago, we had hoped that autism would be added as a condition treatable with medical cannabis. After so many frustrating and sometimes risky medication trials, we thought that this might bring some peace and hope for your future, for our future.

It was recommended but not added, but we kept hoping. Help has come in different forms: home therapists, one medication that seems to have made some difference, your own strength, tenacity, and bravery, and a little dog named Spotty.

Now, the time has finally come. Autism was added as a condition this August. After updated tests to confirm the autism diagnosis, recommendations from the professionals, and some phone calls, we will be meeting with a patient representative at a dispensary this week.

I still think it’s going to help you, and I still think it’s going to help all of us. I just hope we are not too far gone by now.

There was sparring among brothers today; not just a little bickering, but the type where intervention is required. We made it to the end of another day, though, just like we always do.

You tidied up around the house and set the table for dinner after the emotions settled, a sort of peace offering, perhaps, but a welcome one.

You’re growing up. You are doing well at your school. You still love looking at the sunsets with me. You are looking forward to having your friends visit tomorrow. Twelve years have been a lifetime and the blink of an eye. I hope you feel loved, and I hope I have been good enough.

Happy Birthday, my dear boy.

Darkness and Light

My mom sent a photo. It’s hard even to think of my parents as senior citizens, though I am nearly one myself. The image shows participants in a charity race on a bright day, and front and center are my dad and my mom, both reflecting the sun, smiling and looking well…astoundingly so. They are eighty.

I do worry about my aging parents, far away from me. For them, I hold the thought that theirs will be a long, fulfilling sunset to their lives, already well-lived. Their richest blessings are one another, and of that they are keenly aware.

My older children are forging paths into their own trees, mountains, and skies. Their fleeting journeys here with me have evolved to include other pursuits, and I am here, hoping that they know what they stand for, and how deeply they are loved.

Those still at home are my reasons to be here, too, right now, when the days, arduous as often they are, turn quickly to years.

Aaron is sick. From his earliest days, he was the one to get pneumonia when the others had a sniffle. Still, at nearly ten, he seems to be hit hardest by these seasonal bugs. A sore throat, fever, and chills (“shimmers”, as he calls them) kept him (and me) from the last game of his fall baseball season, where his team played for the championship. I can hear him now, breathing erratically and talking about dragons, as he has fallen into a restless sleep.

I worry that I will not be enough for all of these people to whom I have been entrusted as messenger. On the days where I fall short of keeping up, where even the thought of tearing down the mountain of legos or moving the discarded socks and sweatshirts to the laundry basket overwhelms me, it is then that I try to remind myself that it’s just a day, one day, and that I will have a chance again tomorrow.

I worry that we will die before we are done living, but I suppose that most people do.

It seemed a grand idea, to offer newborn chicks to my broody hen, in order to satisfy her mothering instincts and free her from months of occupying an empty nest. It shouldn’t matter that the nighttime temperatures were near freezing. Chicken Bernadette would keep her new babies safe and warm. We wouldn’t have to concern ourselves with the risk of having more roosters. These were rare breed female chicks, shipped to the local post office directly from my favorite hatchery.

Aaron had a break in his fever when the call came; within half an hour, we were in the coop, opening the box and introducing the babies to their new family. Maybe it was just a little reminiscent of the days when I would hurry to the DCFS office to be entrusted with a tiny someone, for whatever reason, for however long.

One of the babies did not look well. She was cold and barely responsive. We put her in the nest along with the other babies, and we hoped for the best through the darkness.

It was a wakeful night. When I opened the coop at sunrise, Bernadette was still perched proudly on the nest. Two hours later, three of the babies were dead.

Aaron’s fever would break and rise, more rhythmic than his breathing. Every chance I had, I checked the coop. The last little chick’s peep sounds reassured me that all was not lost; mother hen Bernadette was tending to her baby.

At dusk, when I went to close the doors and to see that all of the chickens were tucked in for the night, I came upon the baby chick, who lay motionless outside the coop entrance. Bernadette was roosting with some of the other birds. Did she leave her baby out in the cold to die? Did I?

There’s heartbreak in chicken keeping.

There’s heartbreak in parenting.

There’s heartbreak in living.

It’s okay. It’s okay, even when it’s not, because when it’s not, we are probably not thinking of it.

As parents, we try. Sometimes we aren’t enough. Sometimes we can’t be.

I don’t know if I will sleep any better tonight. Aaron is restless, and his fever seems relentless. He is so hot and so cold at the same time. Soon, though, it will be spring again, and he will lace his cleats before heading to the field. There will be new baby chicks at the farm: rare breeds, from the hatchery, but also, perhaps, a feisty young rooster that hatched from a broody hen, if that’s what was meant to be.

My big kids will have new plans.

My parents will see more sunrises and sunsets, together.

I will know that the day holds, maybe not the best or easiest lesson, but the right lesson, for me, for this day.

Where We Are: My Medical Cannabis for Autism Update

“I had a great time. Can’t wait until next week.”

Well, that was a relief, because the faces he made during the hour-and-fifteen-minute basketball clinic had me believing otherwise.

We have come a long way, but we have so far yet to go. Four years ago on this day, I stepped out of character and shared testimony to a room full of people at the Holiday Inn in Countryside. I described, in two-and-a-half minutes, what it had been like to parent my son, and the frustrations and challenges that had led me to this place, on this day, pleading to have autism added to the list of conditions that could be legally treated with medical cannabis.

On this day, four years ago, autism was recommended but ultimately rejected by Illinois’ medical director. What followed was much campaigning seemingly to no avail, and a series of legal appeals that led nowhere but to disappointment.

Meanwhile, we struggled in the trenches through a few more hospitalizations, many medication changes, trials of alternative treatments, more physical holds, broken windows, damaged property, and defeated spirits.

We love our son. Thoughts of the future were overwhelming, as he continued to grow bigger and stronger, and the effects on everyone else were glaring.

Our psychiatrist recommended in-home applied behavior analysis (ABA) therapy; eighteen months later, the services began, with a provider working in our home six days a week. Our son continued to attend the therapeutic school where he had gone since the second month of kindergarten.

It seemed that he would struggle each spring and fall, but we would manage to come out on the other side. Very slowly, we had seen some of the aggression subside. And then, a transition of one of the workers would set the shaky ship off course yet again.

We have had some successful times, and some good family times, even in the community. We have also had to drag ourselves through the dark waters of fear just as we thought the light was coming.

Time marched on. Late this summer, as my mind had been full of many, many things, I received surprise word from an attorney’s office and also the patient advocate (connected to us by our older son) who had sat by my side in that auditorium four years ago on this day. There had been no fireworks, no great celebratory feasts of which I was made aware, but autism had indeed been approved as a condition treatable with medical cannabis. This seemed to be the culmination of a fight that I had all but walked away from, only to have it circle back, it seems, in God’s timing.

The angst has begun to rise once again. It seems the boys take cues from one another, modeling negative behaviors and forgetting to be kind. We seem to forget where we were. We need something, and maybe this is finally it.

I was excited to contact our psychiatrist, a doctor who had been supportive of our journey to try to help our boy with medical cannabis, and who we first traveled many miles to see, and who we now see by virtual office as she has since moved across the country.

We were all set, it seemed…until the need arose for standardized testing which resulted in an autism spectrum diagnosis. I have a cabinet of paperwork on this child, and many files hold hospital reports, office notes, and clinical diagnoses of, among many other things, pervasive developmental disorder and autism spectrum disorder. The elusive standardized test, though, was nowhere in that cabinet, because it had never been done.

Lots of bad thoughts ran around in my head. What if, when we were this close, we were actually in a place where it never could be? What if, after all of this, his autism diagnosis could not be “officially” confirmed? Did it matter?

We have been hoping and rallying for about five years now. We owed him the chance. Our kind lead behavior analyst recommended a psychologist that could do the requested test. We waited about two weeks, made the trip for the testing, and waited three arduous weeks more.

The report came, and I wondered what I had wondered about, when, of course, we had known all along.

It was good to see our doctor’s response when I forwarded the report: “Received, thank you…I will move forward with the application…”

So we wait, once again. And again, we will wait when the application has been submitted to the state. But like everything else, it’s going to be okay. In this very moment, we are okay.

We are back at basketball clinic again, and our boy is smiling and joking around with the other participants. He misses a free throw, and still he smiles.

It has, though, been a rough week at home, for not just this boy. My body is sore from a few too many physical holds of writhing boys. I am glad the sun came back out today, as that always beckons a sense of hope from the darkness.

I am hoping that the time, this time, finally, is near.

*Many thanks to EVERYONE who has helped and supported us as we have desperately tried to make our way!

Afterthoughts: A Foster Family

It has been a few years now since my identity has fallen away. It was just a piece of paper, kept in a drawer most days, but it represented so much more than I would ever realize while it tied me to the words written in simple computer-generated letters. We had a family identification number, a maximum capacity, and regular licensing reviews and social worker visits. We no longer have any of those; our foster care license has long since expired. Now, though, we have much, much more.

We have the reality that comes with signing on to a somewhat mysterious, intriguing, wholly encompassing and challenging pursuit.

While the reasons that some have for fostering are different from those of others, our initial intentions from before we began echo much the same as they do nearly a decade-and-a-half later: we were not really sure where this journey would lead us.

We have opened our doors and our arms; we have fought, fallen, and pulled ourselves up; we have been broken by the very acts of trying to ease the pain. We have realized that with more experience comes more uncertainty, and with more advocacy comes greater anxiety and fear.

On the days when we have been so spent, so vulnerable, so completely usurped by the waves of emotion, we look forward to the quiet dark of night, and the comes a primal cry from someone who, unaware of the emotional states of others, needs what you didn’t know you had left to get her through yet another surge of hurt that has pulled her from her sleep.

It’s your own box of burdens, maybe things that you would never have otherwise recalled, that opens up to haunt you, that begs to be set free, as you desperately try to make sense of how it has come to this.

There’s a loneliness in the way that he hugged me. It made me believe that I, too, am lonely in a far-off, hollow, unidentifiable way.

Some call foster carers “angels” or “saints”. Some of my children have called me “the devil”. I am none of those. I am human, as are we all, just trying to make sense of the nonsensical.

We are all who we always have been.

Foster care means a new rhythm to your days: a rhythm that holds no rhythm at all. Sometimes it means allegations thrown at the easy target. It means investigations, questions, and our own questioning of the very motives that brought us to this day.

It means nearly forgetting who you are, or who you have been, in favor of becoming guarded, hardened, and weary. It means questioning yourself and wondering if even your own instincts are to be trusted in a place where blame and hyper vigilance abound. It means forever wondering if you have done the right thing.

It means looking for the smallest things, the tiniest triumphs, in a field of fury.

It means that once your license is gone, your life will not be as before. You are at once simpler and more complicated. Your family may have expanded, your limbs may be scratched or even broken, and you may no longer recognize yourself in the mirror. You may not look, too, for fear of what you might find.

You will, though, have forged relationships with people and places that have caused your soul to grow. You will have stood arm-in-arm with others and will have borne their pain along with yours.

You will lose your sense of purpose, only to realize that this was not up to you in the first place.

You will look, eyes wide, to the Maker, and cry out from your soul for putting you in this place, in this life, because though we are torn we are all of this earth, for this moment of time.

We’ll always be a foster family: all of us, collectively, through the connections that we have often fought to let go. There’s nothing separating us from the next person…not a piece of paper, not a harsh word, not a judgment.

What I have learned, I guess, is that we will never know.

*******************************

The need for foster caregivers is always strong. Consider this if it may be part of your journey.

Trying to be a Farm Girl

My nine-year-old and a couple of his buddies were loading into our car after baseball practice. Before I had started the engine, he surprised me with what he had to tell his friends:

“My mom’s going to play stupid ‘Follaton Wood’.” He neglected to tell his teammates that he has been asking for that song each time we had been in the car together lately.

I wonder…when exactly do I fall from being a light to the darkness? When does the outside circle open, only to become a force with much to contribute to what that child will become?

I am abruptly reminded that no longer am I alone at my child’s center, at least not around his people; at least not in this situation.

Does he really think our song is stupid? Did he really mean that?

Do the words and influences of others change who we are?

Maybe it’s just a flippant remark, but what if our words impact another in a way that we could never even know, in a way that could alter a part of who they are?

I was called to pick third same boy up early from camp following a behavior episode. In trying to understand what had happened from an outsider’s perspective, my emotions clouded my reason. In his fit of anger and physical angst, my little boy related to me that he was told by staff that they could “control” him. To me, this was dumbfounding, as in our life of chaos and uncertainty, I have worked hard to make certain that my children know that though they cannot control the behavior of others, they are the only ones that can control their own. These words triggered my son into a further state of confusion and rage at the camp. Through my reflections I can understand that the camp staff wanted my son to know that there were rules to be followed and that the counselors were in charge, but the delivery of those words sent my son into a place of helplessness. The incident haunts me, and causes me to wonder if the words that I have so often used to instill courage and confidence have caused him fear in the arms of the outside world, where I was not there to guide and defend.

When my sister’s friend pointed out my awkwardness as I showed her the routine I had so arduously perfected to Michael Jackson’s “Thriller”, my dreams of performing with the American Ballet Theater smashed with the same unfortunate end as the chicken egg that I dropped on the floor of the coop this morning.

I wonder if my words have ever kept someone from dancing for the rest of their lifetime, or even for one song. For my child, I hope that he will lift others with what he chooses to say and do; that he that he will be able to include rather than exclude; that he will be a person that makes a difference; that he will grow up to be kind; that he will choose to include rather than exclude.

When I was a lonely young mom, I raised my hand to greet a neighbor that was waving enthusiastically in my direction, only for her to tell me that she was not waving at me, but at someone else in the distance.

We never know how our words or actions will affect someone else.

I was almost fifty when I finally began to understand crop rotation.

Blissfully planting my tomatoes in the same two square feet every summer, I had never really given deep thought to why my first effort, many moons ago, had been my greatest yield.

My gardening has always been a seat-of-the pants endeavor. I liked it, so I planted it. If things got crowded or if a plant did not do well, I moved it to a different spot. There wasn’t a book that taught me what I longed to know. Rather, my teacher was experience, sometimes with multiple trials over time.

I guess parenting has been a bit like that. We try. We give it what is our best effort at the time. Sometimes, often, we fail. We do what we know. Then we try to learn more, and we do it all over again.

Maybe I shouldn’t have planted that vine right there. Perhaps I should have fed that apple tree at an earlier time in the season. Perhaps I should not have let my daughter go to that party. Maybe I should have collected my son from camp that day without questioning a thing. Maybe I should have just let them eat ice cream for the second time today. After all, I eat it whenever I like.

We’re on our fourth year of keeping chickens. It’s going pretty well. I hadn’t thought that I could fall for a chicken, much less 34. I may not yet be a farm girl, but I am pretty sure I am officially a chicken keeper.

And…I am pretty good at drinking well water from a garden hose…does that count for anything?

While my chickens learn instinctively to retreat to the coop at dusk and to lay eggs in their nest boxes, I am not quite so lucky. There are many things that do not come naturally to me. Give me a little time, though, and I will do my best to learn. I will try. But I still won’t be able to dance. And those words, that admission, is actually a little bit liberating.

I won’t stop trying to be a farm girl. I hope I’ll get there some day.

As we neared our destination, one of the friends piped up from the back seat of the car: “I kind of like this song. It’s pretty good.” I may or may not have turned the volume just a bit higher, and in that moment, I didn’t have to say a word.

🐥❤️

“Follaton Wood”, by Ben Howard, is very much worth a listen.

Eight Days

“Is my suit ready for tomorrow?”

There was a sense of urgency tainted with a little hesitation that accompanied my son’s question.

It was late. I wasn’t planning to do any more laundry.

He had been thinking this through in his head, rehearsing how the mornings would unfold, likely since the day he learned of this camp.

“You’ll be at the camp all week, so you can wear something else for tomorrow, and I will have that one ready for Tuesday.” There was no lack of guilt in this offering, but I had just emptied his sister’s basket into the washer, and I was weary from the day.

“Okay”, he responded. That was it. No yelling, no throwing things, nothing said about how I was ruining his life. I wondered what he was really thinking.

He has come so far. We have come so far. Just once this past month have I had to restrain him physically. The ten-or-more hold days of the not too distant past now seem unfathomable.

How is it that we have made it to today? Here I sit, outside the high school gym where my eleven-year-old son is just one of the fifteen or so boys participating in a shooting drill at the summer basketball camp. No one looking in would have any idea that less than two years ago, we were not sure we would be able to keep him safely at home any longer.

I have not been quiet in my support of legalization of medical cannabis for autism. After some fierce efforts, things have been quiet for a time. Now, though, the word is that people with autism will indeed be able to legally use medical cannabis as a treatment option. For this, and for so many other things, I am grateful.

A creative, intuitive doctor and a team of in-home therapists have been instrumental in helping our son. He has become better equipped to deal with the small things that to him have been very big things.

There are cheers coming from the gym. The atmosphere is positive, and my son and his brother are very much part of this. When Ethan first asked about doing the camp, I wondered if it might be time. I wondered if it might be time to try something to feed his current passion, something which rather than setting him apart from his peers might actually make him feel like one of them. The high school staff has reached out to me tell me how happy they were to have our son at the camp, and to ask how they could help make him feel more comfortable. That, to me, is our first victory.

He loves basketball. He has been staying up late to watch the NBA finals and his Golden State heroes. Little does he know he is fast becoming one of mine.

This is only the first of eight days here at the high school. For today, though, my son has been part of the group, a member of the team.

I still had some kitchen chores to do last night before I went to bed, so I decided it wouldn’t take that much longer to run one more load of laundry, including Ethan’s favorite t-shirt and the leggings that he likes to wear under his shorts. I could do that for him, for his first day of camp, if that’s what he needed to feel okay. I did, and I just may do it again tonight, so his favorite outfit, and he, will be ready for tomorrow.